A Day in the Life

I’m going to take a brief break in telling my story to flash forward to how my days pass now.
In general I have two types of days: those in which a short nap gets me through, and those in which most of my day is spent lying in bed, or at least sitting around in the dark.

A good day’s routine:

Up at 8 am

Meditation

Exercise

Worship time with my girls

Teaching or helping with lessons (we homeschool)

Chores

Lunch

Nap

Work

It is a lot to do in a day for anyone.Factor in the headache and it becomes impossible. For us, something is always left undone. Schooling is a tough issue, but as long as I feel my girls are better off than in public school, I’ll be sticking with it.

On a bad day – which half or more of my days seem to be lately – we throw the routine mostly out the window.
I still get up on time(ish), mostly so the girls will. Without any parental presence they will hang around in pj’s until noon. (Think public schoolers on a Saturday.)
Then I either hang around in the dark and call instructions to them from the recliner, or I give them direction and go back to bed.

Sleeping is one of the best ways to escape pain. It is pretty hard to sleep with a headache, and harder still when your body says you don’t need any more. My favorite past times are also impossible when the headache has me down. I rarely feel well enough to read, being creative is out, and the kids just can’t stay quiet enough for me to enjoy board games. Sleep and watching movies are really the only escapes I have.

The headache interferes with my days off too. I’m reluctant to schedule outings with friends, afraid I’ll have to cancel. I push myself to be available to take the girls places and to help out at church. This often leads to worse headaches later.

I try not to live like I suffer from chronic pain. I think it makes a real difference both in my outlook on life and on my ability to take care of myself and my family. There are people who don’t know I have any issues. Then again, they didn’t know me before the headache.

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3 thoughts on “A Day in the Life

  1. Lisa Cooper says:

    I have been homeschooling my 13 year old for the last month because he has chronic daily headaches. The medical world for the most part seems to think he should learn to push through the pain. Your post indicates to me that my husband and I are on the right track in trying to reduce our son’s stress. He is having less headache time and the headaches rarely spike to the crying and moaning stage now.

    • Otter says:

      My 13 year old daughter also suffers from chronic headache. To some degree you do have to push through the pain. You are right in trying to help with controlling the stress. Also consider helping your son find helpful ways to cope, like simple reliaxation techniques.
      But don’t let doctors treat your son like his pain is not real or that his struggle with it is not justified. If you haven’t already, look for a neurologist who specializes in headache. If you’ve tried one and felt your concerns were dismissed, try another. There aren’t as many treatments available for kids, but there are some.

      • Lisa Cooper says:

        Thanks. We had high hopes the neurologist headache specialist would be able to help him, but not so far. We have some hope that neurofeedback will work. He’s not doing too well with biofeedback or other techniques.

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